KPBS news article about misophonia

http://www.kpbs.org/news/2013/aug/21/why-does-sound-chewing-make-some-people-panic/

One of the most comprehensive and sympathetic news stories about misophonia I’ve yet come across. Well worth a read.

New Association being set up to further research into Misophonia

The Misophonia Association is a non profit public benefit corporation formed to provide support, information, education, and advocacy for those who suffer with the condition.  We are also committed to encouraging research and study of the condition.

BBC Radio 4 Word of Mouth featuring misophonia

http://www.bbc.co.uk/programmes/b037tnxm

This will be aired today (August 6th) at 4pm and will be available on BBC iPlayer afterwards.
Dr Kumar, Guy Fitzmaurice and myself were interviewed for our own personal and professional experiences of Misophonia.

The podcast is available to download here:

http://www.bbc.co.uk/podcasts/series/wom.mp

 

Clarification for once you’ve had a listen.

The little quip about having sympathy for myself and Guy, but I work in a cake shop….

I actually work in a Delicatessen (for many complicated reasons and events based both on the difficulties faced finding what would be deemed a ‘proper’ job (by others peoples standards) after university, and the limitations I face when it comes to working in particular environments, such as enclosed office spaces with KEYBOARDS and LOTS OF PEOPLE who eat at their desks all day long, but I mostly work in the Deli because I love it, and the people I work for are like my extended family)

Aside from this, as I pointed out in the interview, no one actually eats in the deli, yes I sell food to people but it is a take away service. You don’t often see people eating the food they buy in sainsburys or tescos do you, particularly if it’s not even been paid for at the checkout?

In short, by being around food that can’t be eaten, with the constant humming and cluttering sounds from our big industrial fridges I feel much safer than I would feel in an office environment or another such place with many collegues who could possibly trigger me and I’d have no escape. I had one such job only last year and I had to quit after four months because my boss and collegue who shared the office at their lunches at their desks and always had crisps. It became unbearable and I was struggling to even find the motivation to go into work towards to end.

It is just another example of how complex this condition can be, it is not simply ‘hearing eating noises pisses me off’… this view is flippant, and potentially damaging for the future of misophonia and for those who suffer from it, and I will do what I can to irradicate this notion from the public interpretation of this potentially  serious and life affecting disorder. Thank you.